I have developed a disdain for religion. I suppose I should clarify that statement. I am overwhelmed by the depth of religious communities. The communities give me hope. Our family has survived Jordan’s Journey on the backs of our friends at All Saints Church. We have been touched by the generosity, compassion and love of [...]
I’m sorry I have not posted in awhile. Part of the reason is that we’ve been busy with the usual family shenanigans that accompany this time of year. But I’ve also avoided posting because I’m superstitious and Jordan has been doing exceptionally well. The quick version of the story: she’s very mobile, feeling very well, [...]
I wish there was a more eloquent way to say she’s doing great. She is. So I will. She’s doing great. And I probably notice it more than others in the family because I’ve been traveling so much. Being away for several days only makes her progress more apparent. Her progress is staggering. I go [...]
She sleeps in a pink castle, cream colored cheeks against a fluffy purple pillow. The castle is really a square tent with four spires and an arched entry flap. She asked her mom to erect it in her room next to her bed. Last night it is where she slept, and this afternoon it is [...]
I’ve been on the road, but my nightly phone calls with Jordan have been encouraging. She’s talkative and keeping her chin up. She restarted chemotherapy yesterday with no complications — and little fuss.Share on Facebook
I’ve seen a lot. Working in entertainment does that to you. There are a myriad of memories and experiences that caused me to sigh and feel so little in comparison to the apparition of greatness. A David Lean tracking shot. A Bob Dyland lyric. The helicopter onslaught in Apocalypse Now. The opening strains of Aida. [...]
Jordan rested well over the weekend. She’s moving around the house skillfully and finding new and inventive ways to occupy her time. She wanted to clean all day Sunday. It was an obsession. I can’t say there was any joy in it. It seems to be more of a compulsion than a way to pass [...]
Ever since her very first hospital stay, Jordan has reacted well to pet therapies. Specially trained dogs visit the hospital nearly every day. Their sole purpose: bring a little joy to sick kids. In Jordan’s case, the effect is startling, as these three pictures reveal. The first picture is from her second day in the [...]
It’s been a long day, so only a short post tonight. Jordan was discharged from the hospital this evening. She couldn’t wait to get out of there. She had a generally good day visiting with some of her favorite friends before getting the green light to come. She needs to slow down — she tries [...]
