Jordan’s Journey

November 15, 2008

Anxious

Filed under: The Journey — Larry @ 8:26 pm

A few years ago, I decided to take a slightly objective point of view to this blog site. Although it is nearly impossible not to inject my feelings, I wanted to chronicle Jordan’s story so that she could appreciate it years later. It wasn’t so much that I wanted to distance myself, but more that I wanted the site to be about her, rather than me.

This post is an exception to the rule. This post comes from inside. It might make you uncomfortable. It makes me uncomfortable. But, it’s part of the journey. (more…)

Jordan, the Worrier

Filed under: The Big Steps, The Journey — Larry @ 11:26 am

Jordan, the Worrier

She’s a little nervous. She has a full week ahead. On Monday, she returns for chemotherapy. Then, Tuesday she goes in for a new MRI scan. Wednesday, it’s a full evaluation from her neurooncologist. All in all, she’ll be spending a lot of time at Children’s Hospital.

I have previously written about her growing maturity and sense of wellness. January will mark the sixth year of her journey. In six years, any child will change a lot. Their entire identity emerges–their sense of the world around them and the way that it connects to their lives. Swiss Psychologist Jean Piaget, in his landmark studies of children’s cognitive development, found that children Jordan’s age begin mastering “concrete operations”–the ability to apply logic and tie it to personal experience. I think her growing ability to do just this is creating some sobering realities. She worries more than she once did. The uncertainty surrounding every MRI scan casts a shadow on her otherwise gregariously optimistic spirit. Last night, she confided to her mother that she was anxious about Tuesday’s scan.

– What if my cancer is growing again?
– Then Dr. Findlay will have a new plan of attack. He always has 2 or 3 in his back pocket, just in case.

Jeanette’s counsel provided some comfort, but Jordan grew a little quiet thereafter. In these moments she often vacillates between excessive intimacy and extreme isolation. She either wants to sit right next to you and lean all over you, or retreat to a quiet corner and occupy herself alone, quietly. (more…)

November 9, 2008

A Rough Couple of Days

Filed under: The Journey — Larry @ 9:25 am


Even in November, Jordan prefers to lounge California style–in a bikini.

She had a rough couple of days this weekend. Saturday, as we started our weekly pancake ritual, she suddenly ran for the bathroom. By the time I caught up with her she was retching over the toilet, emptying what little she had in her stomach. True to form, Jordan was unstoppable. As I held her hair, she kept trying to talk to me, garbling her words with burps and vomit. I had to keep telling her to wait. She could tell me later. When she had finished, she finally got the words out.

– I hate chemo. This is disgusting.
(more…)

November 7, 2008

Ab ovo

Filed under: The Journey — Larry @ 7:17 pm

Our refrigerator melted down. When I awoke Tuesday to a pool of water, I blamed the kids for not closing the freezer door. Then I hopped on a plane for a week of travel. It turns out the kids closed the door. The fridge shorted out. As a result, all the food we’d saved / neglected / relied upon spoiled. Other than a few essential items Jeanette purchased yesterday, the cooler is now completely bare. (more…)

November 4, 2008

The Euphoric Poll

Filed under: The Journey — Larry @ 8:17 pm

I don’t mean this as a political message at all. I am in St. Paul, MN. At 10pm CT, Jordan called me. She was euphoric, hooting and hollering. I asked her why she was so happy.

Her reply:
–Barack Obama won! Isn’t that cool?

November 1, 2008

Curse Down Twice

Filed under: The Journey — Larry @ 1:52 pm


For the second time in a row, we made it through October with Jordan in good health. The cursed month appears to be behind us. She’s not only healthy, she’s vibrant. Halloween was a tour de force. Luc turned in for the night long before Jordan did.

She met with her oncologist on Wednesday and received a glowing progress report. In December, she’ll get another MRI to track the changes in tumor growth. The outward girl makes us all feel optimistic. She is witty, loving and full of energy. We celebrated another quiet October with a feast and drinks. As we toasted Jordan, she smiled, lowered her head, and said more quietly than usual, “that’s what I do — I kick cancer’s butt.”

October 25, 2008

In her shoes

Filed under: podcast — Larry @ 10:48 am

We are introducing a new segment for our podcast — In her shoes — a chance for Jordan to talk more about her experiences with cancer. This week Jordan talks to me about what it’s like to go in for chemotherapy.

 
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October 18, 2008

Jordan’s Podcast, Episode 4

Filed under: podcast — Larry @ 12:12 pm

Jordan takes a break from school and play to record another podcast. This time she talks with her brother about his trip to Yosemite and his claymation work.

 
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Luc, the studio mogul

Filed under: The Journey — Larry @ 6:00 am

Jordan’s brother Luc has taken to animation. He enjoys doing stop-motion using a video camera and his MacBook. He and his godbrother launched their own studio, Inbox Studios making clips they label Claytoons. You can view them all on YouTube under the handle, animation508.

October 12, 2008

The Constant Interlocutor

Filed under: The Journey — Larry @ 6:58 am

The prey is nearly always caught off guard. They have no reason to suspect an attack. The predator stalks in plain sight–charming, glowing, smiling. She moseys toward them with a twinkle in her eye and a disarming swagger in her step.

“What a funny little girl,” they think to themselves as she gesticulates with a quirky greeting.

Little do they know they are down for the count. A conversation with Jordan is untamed, frenetic, and customarily one-sided. She begins with random observations dissected from a linear thought but delivered in fragments. (more…)

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